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Cancer Etiquette: Tips to Help a Friend

In Uncategorized on January 4, 2014 at 1:33 pm

Ever feel at a loss for what to say to a friend who has cancer? Most of us have been there; what many of us do not realize is that our words and actions will be forever ingrained in the psyche of the recipient. Be it fear or the feeling of helplessness, it is often harder to be the loved one than the patient and sadly, we may say or do the wrong things.

To this day I still remember the day a friend came to visit me after my bilat; seeing my kitchen messy, she told me that her husband would be appalled if she left a basket of bread out on the counter top. Why this hit me the way it did, I am not sure, but at the time all I could think of was WTF?  While her words had nothing to do with my cancer, my current focus surely was not on the neatness of my kitchen.   Six years later and those words are still embedded in my mind–was it my fear that I wouldn’t be able to care for my family? Since then I have heard endless tales of words that stung, of well-meant comments that didn’t quite come out right.  Seems like we all need a user-guide to cancer etiquette.

When Surviving Beautifully, a resource for expert answers and support for women during cancer treatment, asked me to write a post for them on cancer etiquette, I thought wow, yes, this is surely a big topic.  When I saw this on their site “We provide the information you need to survive your way.  Every day”, I knew I wanted to write for them and was grateful to be part of their team. I hope you enjoy the post:

Surviving Beautifully Photo LadiesCancer Etiquette

by Elyn Jacobs for Surviving Beautifully

One more thing–don’t tell her she is so brave.  I remember how angry my mother would get when someone would say that to her.  “Brave?” she would say, “I am just trying to stay alive.”  Looking back, she was brave; one must be brave to tackle cancer–to sift through the options, make critical decisions and turn off the voices of others.  But don’t say it….we don’t want to be brave, we want to survive—our way, every day.

Please visit Surviving Beautifully for expert advice during cancer:

http://survivingbeautifully.com/emotional-support/  http://survivingbeautifully.com/elyn-jacobs/

http://survivingbeautifully.com/cancer-etiquette-elyn-jacobs/

Elyn

             ~~If you don’t know your options, you don’t have any~~

Elyn Jacobs is a breast cancer survivor, professional cancer strategist, speaker, and the Executive Director for the Emerald Heart Cancer Foundation. Elyn empowers women to choose the path for treatment that best fits their own individual needs. She is passionate about helping others move forward into a life of health and well-being. Elyn has been featured on CNN Money, Talk About Health, and Breast Cancer Answers and has written for the Pink Paper, Breast Cancer Wellness, Integrative Oncology Essentials, Surviving Beautifully, Body Local and more, and writes the Options for Life column for the Natural Healing-Natural Wellness Newsletter.  Elyn hosts the Survive and Live Well Radio Show on the Cancer Support Network. Elyn lives in New York with her husband and two young boys. https://elynjacobs.wordpress.com/about/

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2013 Blog Highlights; Top Five Articles

In Uncategorized on January 2, 2014 at 2:01 pm

WordpressIt is a new year, a time to reflect on all that you have done and to focus on the long healthy life you intend to live. Hold to your heart the affirmation that you are and will be a survivor. Today is the first day of the rest of your life; go for it. Smile, live, laugh and love. Wishing you a healthy and happy New Year–may your dreams come true. (Photo credit to WordPress)

According to WordPress, the Louvre Museum has 8.5 million visitors per year. My blog was viewed about 73,000 times in 2013. If it were an exhibit at the Louvre Museum, it would take about 3 days for that many people to see it. Still, I think it is pretty cool.  My busiest day of the year was July 15th with 2,145views.  Thank you WordPress  for compiling the reports.  Thank you to all of my followers for your support. I look forward to serving you in 2014. 

Blog Highlights 2013

These are the posts that got the most views in 2013:

Natural Alternatives to Tamoxifen

Natural Alternatives to Aromatase Inhibitors

Why We Are Not Winning the War on Cancer

Are Your Headphones An EMF Health Risk?

Salvestrols: Does Nature Hold the Answer to Cancer?

Where are my visitors from?  156 countries in all! Most are from The United States. Canada & The United Kingdom were not far behind.

TheCancerSupport W4WNJoin me on the Survive and Live Well Radio Show, on W4CS, The Cancer Support Network. 1pm (ET) Tuesdays, live on http://www.W4CS.com. Find the best options for you– for your cancer.  

To view the show schedule for Survive and Live Well, please click here.  To replay past shows, please click here or visit Survive and Live Well on  iHeartRadio Talk.

iheartVisit Survive and Live Well or iHeartRadio Talk for free-replays for the Survive and Live Well Radio Show.  Visit my webisite for more articles, resources, one on one cancer coaching and the information you need to beat cancer.

             ~~If you don’t know your options, you don’t have any~~

ej portrait 150resElyn Jacobs is a breast cancer survivor, professional cancer strategist, speaker, and the Executive Director for the Emerald Heart Cancer Foundation. Elyn empowers women to choose the path for treatment that best fits their own individual needs. She is passionate about helping others move forward into a life of health and well-being. Elyn has been featured on CNN Money, Talk About Health, and Breast Cancer Answers and has written for the Pink Paper, Breast Cancer Wellness, Integrative Oncology Essentials, Surviving Beautifully, Body Local and more, and writes the Options for Life column for the Natural Healing-Natural Wellness Newsletter.  Elyn hosts the Survive and Live Well Radio Show on the Cancer Support Network. Elyn lives in New York with her husband and two young boys. https://elynjacobs.wordpress.com/about/

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Survive and Live Well on iHeartRadio Talk

In Uncategorized on November 21, 2013 at 5:48 pm

iheartThe Survive and Live Well Radio Show is now on iHeartRadio!

Choice, it gives us a feeling of empowerment—it allows us to regain the much needed control we somehow lost when we heard “You have cancer.” That’s why on Survive and Live Well we empower you with the information you need to make the best possible choices for your cancer, and to help you along the road to survival.  After all, if you don’t know your options, you don’t have any.

Join me weekly when I chat with the experts about treatment options and lifestyle choices that can help you not just treat cancer, but beat cancer, survive, thrive and live well.

Listen live, Tuesdays at 1pm (EST) on www.W4CS.com or via iTunes or iHeart Talk. Join the team at the Cancer Support Network, empowering you to defeat cancer.

iHeartRadio-Talk-logo-blackReplay your favorite shows anytime via iHeart Talk @ Survive and Live Well. You can also access the Archives on my website.

 Upcoming Schedule: (Please visit my website for show details and guest information)

Tuesday November 26, 1pm EST– Donald Abrams MD– Integrative Oncology: Optimizing Cancer Care 

Tuesday December 3rd, 1pm EST– Stacia Hachem–The Estrogen Gene Test: What You Need to Know

Tuesday December 10th, 1pm EST–Dr Michael Schachter MD, CNS, FACAM–High Dose Vitamin D and K2 for Cancer: Discussion of the Standard of Care

Tuesday December 17th, 1pm EST– Jana Flaig–Practical Tips to Knocking Out Fear

With a diagnosis comes fear, but also the urgent need to make treatment decisions—some of which will affect quality and quantity of life. We must also address the root cause of our cancer and not just treat the presenting symptom.  We need to change the environment in which our cancer was permitted to grow and make it one less hospitable to the disease.

A coach can help to bridge the gap between what you will hear from your allopathic oncologist and what you need for survival; she can help you find the best path for your cancer. Empower yourself to build a survival team incorporating experts in the conventional, integrative and holistic world. Visit my website, www.elynjacobs.wordpress.com for information, resources and one-on-one cancer coaching.

Elyn

             ~~If you don’t know your options, you don’t have any~~

ej portrait 150resElyn Jacobs is a breast cancer survivor, professional cancer strategist, speaker, and the Executive Director for the Emerald Heart Cancer Foundation. Elyn empowers women to choose the path for treatment that best fits their own individual needs. She is passionate about helping others move forward into a life of health and well-being. Elyn has been featured on CNN Money, Talk About Health, and Breast Cancer Answers and has written for the Pink Paper, Breast Cancer Wellness, Integrative Oncology Essentials, Surviving Beautifully, Body Local and more, and writes the Options for Life column for the Natural Healing-Natural Wellness Newsletter, and hosts the Survive and Live Well Radio Show. Elyn lives in New York with her husband and two young boys.

  • Follow Elyn on Linkedin
  • Tune in to the Survive and Live Well Show
  • Replay the Survive and Live Well Radio Show archives
  • Follow Elyn on Facebook
  • Follow Survive and Live Well on Twitter

Behold the Guinea Pigs: Cancer Treatments Fail Patients

In Uncategorized on November 17, 2013 at 7:13 pm

Cancer treatment has not advanced much since 1971.  We have plenty of drugs, many of which have failed–but not until they were “tested” on patients before proven safe and effective.   I find that interesting.  Chemo was never proven safe or effective in most cases and is still being used.  On Friday, I attended the MSKCC Health Education Seminar.  Dr Alexandra Heerdt, MD, MPH, FACS, gave an excellent presentation on the history and failure of chemotherapy for the treatment of breast cancer.  Okay, so her intent was not to point out the failures, but rather the need for new drugs and increased surveillance. She also gave a thorough  presentation on surgical options for breast cancer. But my take home was that we are testing drugs on humans—humans who have husbands, wives, children and parents; humans that don’t want to die of their cancer, but also do not want or deserve to die of the treatment; humans who are led to believe that these drugs will cure them; humans who deserved to know that cancer treatments encourage more cancer.

Heerdt commented that in the past, chemotherapy was given to most women, but sadly was not beneficial (there was a benefit for ER negative patients).  She stressed that Oncotype DX testing is helping to screen out those who would not benefit from chemotherapy and should be spared the toxic drugs.  We can hope and pray that our numbers indicate that we should not be coerced into accepting drugs. We can hope and pray that more doctors will use chemotherapy with caution and only with the use of integrative support. We can hope and pray that scientists will come up with drugs that cure cancer.

The Melanoma-Sun Myth

We also heard from Dr Daniel Coit, MD, FACS.  Did you know that most melanomas are not related to sun exposure and that therefore sunblock or avoidance does not prevent melanoma? Melanoma is directly related to family history; a disease of gene mutations.  Dr Coit presented some startling evidence and cleared up important myths regarding melanoma.  He identified the gene mutations which are responsible, and provided valuable information on the various skin cancers and the treatments for them.  He thoroughly explained the shift form treating the diagnosis (the cancer) to treating the genes. He reminded us that responsible sun exposure is still important to prevent basal and squamous cell carcinoma, and uh, wrinkles.

OLYMPUS DIGITAL CAMERADermatologists would like you to lather on toxic sunscreen should you even consider walking outside for even a few minutes.  Would you trade a few wrinkles for a cancer-free life?  I would.  Coit showed a picture of Brigitte Bardot; a stunning sunbather.  He then showed a picture of her later in life, full of wrinkles, and suggested that she is an example of why you should not sunbathe.  However, yes she is old and wrinkly, but that is just it–she is old and wrinkly and enjoying a long life without cancer I would like to have heard him acknowledge that sunlight prevents cancer, but sadly I did not hear that. Not one word was mentioned about the need for sufficient vitamin D. While I certainly believe that we should avoid excessive sun exposure and should never visit a tanning booth, a reasonable amount of sunlight on a daily basis can go a long way in the pursuit of a healthy life—for both body and soul.  So skip the gym and go for a run on the beach. Responsible sun exposure will prevent many cancers; commercial sunscreen will contribute to it—despite what your derm tells you.

Coit also spoke on the failure of past treatments and the hope for new ones. He explained that chemotherapy has not been effective for melanoma.   Currently doctors are using immunotherapies as well as targeted therapies, but used alone, neither of these is very effective.  Immunotherapies afford a dramatic effect immediately, but the results are unsustainable.  They take the brakes off the immune system so it can fight the cancer, but the effects don’t last. Targeted therapies are then introduced to focus on gene mutations; the goal being to attack specific cancer cells without harming normal cells.  Ideally, they should be used together, but this would be too toxic to the patient. I would argue that consecutively they are too toxic, and the side effects are horrific– double the side effects; double the resulting effects.

               ~~If you don’t know your options, you don’t have any~~

Scientists want to cure cancer; it’s just a formidable foe.  We roll out their “cures” perhaps out of desperation; we cling to the hope that with each new drug, it will be the one. But drugs have under-performed and cost us many lives.  Before you accept any treatment, bypass meaningless statistics and ask yourself and your doctor the following questions:

  • Will this treatment cure me?
  • Could it kill me?
  • What are the possible side effects and resulting effects?
  • What is your downside to refusing the proposed treatment?  Is it measurable?
  • Are there reasonable alternatives?

Eastern and Western medicine has yet to become fully integrated.  Conventional doctors consider “alternative” therapies to be dangerous.  Certainly some can be, but many are quite safe and effective.  Conventional medicine continues to offer new options–perhaps one day East will meet West. Empower yourself to get the best treatment for your cancer. As I always say–if you don’t know your options, you don’t have any.

You may also want to read this article:

Medicine’s House of Cards – What Happens When We’ve Got It All Wrong

Elyn

~~If you don’t know your options, you don’t have any~~

Elyn Jacobs is a breast cancer survivor, professional cancer strategist, radio talk show host, speaker, and the Executive Director for the Emerald Heart Cancer Foundation. Elyn empowers women to choose the path for treatment that best fits their own individual needs. She mentors women who are coping with issues of well-being associated with breast cancer and its aftermath; she is passionate about helping others move forward into a life of health and wellbeing. Elyn has been featured on CNN Money, Talk About Health, and Breast Cancer Answers and has written for the Pink Paper, Breast Cancer Wellness, Integrative Oncology Essentials, and writes the Options for Life column for the Natural Healing-Natural Wellness Newsletter. Elyn lives in New York with her husband and two young boys.

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Listening for the Question that Wants to be Asked

In Uncategorized on November 6, 2013 at 1:15 pm

Coaching is the missing link in cancer care. We all need an advocate when faced with a cancer diagnosis. How great is it when your advocate is a coach?  And how about if that coach happens to be your wife? The following is a quest post by author and coach, Aileen Gibb.  Faced with a grim diagnosis, and armed with skills, her husband questioned and defied doctor’s orders–and refused to die on schedule.

Yes, we need our medical experts—but there are many paths for cancer.  Yours just might not be the one your doctor recommends.  Enlist an advocate, hire a coach, empower yourself to beat cancer.

 Is it time for you to write your own story?

Aileen-GibbWhen my larger than life husband was diagnosed with stage four cancer, I knew that the skills I had garnered in my twenty year career as a professional coach were going to come into their own. Nobody expects such a diagnosis or to be told that it would involve major, life changing surgery. Two years on, with my husband fit, fat and healthy again, I believe it was asking the right questions, listening and not always believing the “experts” that carried us through.

I am of a generation brought up to believe that doctors, dentists, consultants, church ministers, teachers – in fact any professional – had the right answers. My parents would never question authority and would always do as the doctor ordered. I was seen as somewhat of a rebel if I challenged authority. This first stood me in good stead at the age of 13 when I refused to believe my career advisor. I had a vision that I wanted to go to university to do business studies combined with languages. My career advisor told me no university in Scotland ran such a course. I did not accept his expertise and quickly discovered that the University of Strathclyde in Glasgow would allow me to take courses from different curricula to achieve my goal.

This questioning nature followed me into my own business career spanning HR, Sales, General Management, and Business Consulting. In each role, I found myself questioning “bosses” were telling us what to do. Surely there was another way. A more human way, where each individual could be seen and fully heard as a real person. I found that new way in my late thirties when I had the privilege of working with a group of women entrepreneurs. I discovered that asking the right questions, equipped these women to listen to themselves, to hear their own strengths, ambitions and desires and to turn their dreams into reality. This was my first experience of pure coaching, which focuses on the individual and which unlocks self-awareness, self-belief and the strength and confidence to achieve things previously seen as difficult, challenging or impossible.

There is a proliferation of coaching in the world now. In business and life, many people are working with a coach to move beyond their current horizon, achieve goals and realise dreams they thought otherwise impossible. I’m intrigued by the process by which this happens. I often describe it as having another pair of eyes to see things with, another pair of ears to listen to and really hear your own questions and possibilities; as a way of amplifying your voice to ask for what you really need. It’s like having an extra engine to power your next move and take action.

A colleague asked me why everyone wants to be, or to have, a coach. It’s not really that we all want or need a coach – rather it’s that we want and need the deep, human conversation that emerges from that coaching space. The connection that enables us to listen to the real questions in our heart, to find the courage to give voice to what we need and to challenge all the limitations we think are holding us back or keeping us stuck in the same old patterns and habits of behaviour.

Nowhere is this more important than when faced with the prescribed answers of any “expert”. Faced with life-shattering news such as a cancer diagnosis, we face momentous choices. We are overwhelmed. We are vulnerable to jumping in and doing whatever the experts tell us to do. We want things to be fixed quickly. We want everything to be right again. Now, more than ever, it is important to slow down, ask questions and listen to our own guidance.

My husband had watched me work as a coach for many years. Sometimes he was quite dismissive of my “woo-woo” ideas. Now I watched as he listened to the experts, asked questions, and took the time to think through very carefully what he felt was right for him. I was proud of him standing up for what he needed. Of the ownership he took of his own treatments. Of the tolerance he had for all the discomfort and indignities of the journey. And of the confidence he showed in trying out new things from the field of complementary therapies to support him.

Most of all I’m proud of how he questioned one of his oncologists. Every time we would visit, this oncologist said “you better get your affairs in order”. He was doom and gloom, quoting the downside statistics of other people’s cases. If anything, his extreme negativity, made my husband the more determined to question him. While one part of us heard what he said, another part of us would come out of the clinic asking “why should we take that as the truth?” and we’d ask ourselves what can we do next to make things better. We owned it. We didn’t hand it over to the expert. This came to be our creed: what we chose to accept or not, to question or not, to hear or not, was up to us. My husband would write his own story. His current version is that he will live till he is 87 and hopefully go back and knock on that oncologist’s door and say told you so!

We need the skills and knowledge of the experts. However, theirs is only one version of the story. We all have the opportunity – and the right – to ask questions and listen for our own answers. To write our own story. And we have to be bold and trusting enough to do so. At times when we are most vulnerable, hearing our own voice and responding to its call is a vital part of being human. It’s in all of us.

As a final note, this call lies in the heart of those experts too. My husband’s surgeon was an amazing person. One of the best listeners I’ve met. His humanity, his authenticity, his listening and his empathy provided us with the strength to hear our choices and to make our own decisions. AND here’s the twist: my husband initially agreed to proceed with the surgery. He was actually on the table when, his surgeon, programmed as he was to “cut it out” stopped himself. He heard something. His own inner voice told him to pause: that maybe this surgery was not in the best interests of this patient. He resisted all his own expertise. Everything that told him this was how to fix things. He stopped and listened and asked some more questions. He sewed my husband up again and called me. Aileen, he said, I don’t know why but for some reason I heard a big question in my head asking whether this was the right thing to do. I believe your husband will have a better quality life if I don’t operate. I’m handing him over to the chemo and radiation guys for treatment instead.

That was over two years ago. I like to think that something in our relationship with that surgeon – in the way we listened to each other and explored questions together – influenced the outcome.

The only question I have now is what other adventures are calling me with a husband who’s going to live till 87 years old?

 Aileen Gibb is an inspirational coach, facilitator and leader whose work has taken her around the globe. She has worked with leaders and teams in Kazakhstan, Venezuela, the Middle East, France, Angola and in many companies in the UK and North America, to uncover new possibilities and transform results. Where she has travelled she has been amazed at the power of coaching-style conversations and the choices people make to become more successful in their work and to live more fulfilling lives. Aileen is from the small village of Fyvie, in North East Scotland and has lived for the past twelve years amidst the rocky mountain in Canmore, Alberta, Canada with her husband, Jake and their two boxer dogs. Aileen thanks you for your interest in VOICES, please let her know how it inspires you. http://www.aileengibbvoices.com https://www.facebook.com/aileengibbVOICES

voices-bookcover-3dVOICES is a series of connected coaching stories which reflect many of the real-life choices people might consider making to live the life they truly wish for. All the stories are fiction and her hope is that one of the stories – or one of the questions in one of the stories – might resonate with your life story and invite you to make a choice. The coaching stories are interwoven with the musings of a future-guide who travels to and from a parallel time, considering what the key messages are for inspiring a better future society.

VOICES is available for purchase now and although Aileen has some upfront costs to recoup, as soon as it starts to generate profit, funds from the book sales will be going to support people going through cancer to access complementary therapies such as acupuncture, which are proven to mitigate the extreme fatigue and other side-effects of cancer treatments. 

Where to Purchase:

Aileen-Gibb-Blog-Tour-Days-150Giveaway: (http://www.rafflecopter.com/rafl/share-code/Y2ZkMWRlMjgzM2ZkMWM4ZTE5MGFhYzhiMGY3M2M4OjU=/)

  • First Prize: Autographed copy of VOICES and 2 hours of coaching with Aileen Gibb
  • Second Prize: Autographed copy of VOICES
  • Third Prize: Autographed copy of VOICES

Elyn

~~If you don’t know your options, you don’t have any~~

Elyn Jacobs is a breast cancer survivor, professional cancer strategist, radio talk show host, speaker, and the Executive Director for the Emerald Heart Cancer Foundation. Elyn empowers women to choose the path for treatment that best fits their own individual needs. She mentors women who are coping with issues of well-being associated with breast cancer and its aftermath; she is passionate about helping others move forward into a life of health and wellbeing. Elyn has been featured on CNN Money, Talk About Health and more and has contributed to Breast Cancer Answers as well as written for the Pink Paper, Breast Cancer Wellness, Integrative Oncology Essentials, and she writes the Options for Life column for the Natural Healing-Natural Wellness Newsletter. Elyn lives in New York with her husband and two young boys.

  • Follow Elyn on Linkedin
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DIM: A Bright New View on Cancer Management

In Uncategorized on October 31, 2013 at 12:01 pm

Back in April I wrote about the use of DIM (diindolylmethane) with respect to Estrogen Metabolite Ratios (DIM-New Thoughts on an Old Story). New research by Dr Jacob Schor indicated that maybe we shouldn’t be using the estrogen metabolite ratio test to measure the “good” vs “bad” estrogen in our body—at least not to determine risk of breast cancer and for the recommendation of DIM to influence this ratio. Well, it seems the old wisdom truly is out; we were barking up the wrong tree.  Further research confirms it–best just to toss that test aside.   However, that led to the lingering question: what to do with DIM?

To read more on the new research on Estrogen Metabolite Ratios, please read this informative post by Dr Keith Block, DIM and Breast Cancer. Thank you Dr Block for the research and the post.

But hold on, don’t toss the DIM.

DIM pillsDIM is a product of cruciferous vegetables and we know what a huge role crucifers play in cancer prevention and treatment. Plus, while estrogen is not the villain it is made out to be (read more about that in my upcoming post), eating cruciferous vegetables will help the liver to break down and eliminate excess hormones as well as toxins. Adding bitter greens, such as arugula and chicory, to salads will also help the liver excrete excess hormones. So eat your crucifers, take your DIM and broccoli supplements, just don’t bother with the estrogen metabolite ratios.

Elyn

~~If you don’t know your options, you don’t have any~~

Elyn Jacobs is a breast cancer survivor, professional cancer strategist, radio talk show host, speaker, and the Executive Director for the Emerald Heart Cancer Foundation. Elyn empowers women to choose the path for treatment that best fits their own individual needs. She mentors women who are coping with issues of well-being associated with breast cancer and its aftermath; she is passionate about helping others move forward into a life of health and wellbeing. Elyn has been featured on CNN Money, Talk About Health and more and has contributed to Breast Cancer Answers as well as written for the Pink Paper, Breast Cancer Wellness, Integrative Oncology Essentials, and she writes the Options for Life column for the Natural Healing-Natural Wellness Newsletter. Elyn lives in New York with her husband and two young boys.

Follow Elyn on Linkedin

Tune in to the Survive and Live Well Show

Replay the Survive and Live Well Radio Show archives

Follow Elyn on Facebook

Follow Survive and Live Well on Twitter

Donate to the Emerald Heart Cancer Foundation

What Will You Do for the Cure?

In Uncategorized on October 22, 2013 at 8:16 pm

We all want a cure for cancer.  We walk, we talk, but things don’t change.  Scientists have great ideas.  They come up with vaccines, therapies and tests that will help your doctors to determine if a suggested treatment will work. But, they need our help. Below is a guest post from a lovely and determined scientist. It is a plea for help…yours. Ann believes that the biggest contributions any patient can make towards the race for a cure are to donate his or her own tumor for research and to share experiences with genomic testing.  I am a huge supporter of options and education. To win this war, we need it all….we need conventional treatments with nature’s support.  We need to take advantage of every available tool.  Thank you Ann, for your commitment to fighting this disease.

Finding the Cure……..

Once in a while, I humor my husband by watching an NFL game with him. I can’t say that I was following the game closely when it wasn’t the 49ers playing, but one really doesn’t have to follow the game too closely to realize that there is a lot of pink in the field these days. To me, this speaks volumes about the collective power of the cancer patient community.

Every cancer patient I know wants to join the fight against the disease. Millions of people walk because that seems to be the single most concrete action to make a difference. I’m here to tell you, you don’t have to walk 60 miles or wear pink. There are other ways.

Until recently, I’ve been actively working on finding new cancer therapies for triple negative breast cancer. One of the biggest huddles I faced was that we often do not have enough tumor samples to estimate the frequency of a particular mutation in the population. This makes it challenging to interpret the significance of novel mutations. To complicate the matter further, perhaps the best way for us scientists to figure out what went wrong in a tumor is to compare it with a group of normal tissues. As you can imagine, it is extremely difficult to get normal samples; for the obvious reason, normal people do not donate their tissues. While there are certainly ethical considerations associated with asking for a biopsy from a normal person, I believe the single biggest contribution any patient can make towards the race for a cure is to donate his or her own tumor for research.

Secondly, one thing that attracts me most about cancer research is the incredibly fast pace the field is moving. Cancer scientists and oncologists are always in the frontier of technology development and application. It is thus not surprising that the genomics and personalized medicine fields find their first home with oncology. In cancer treatment, personalized medicine makes use of various genetic biomarkers and diagnostic tests to identify tumor subtypes and predict an individual’s response to various therapies (See MammaPrint example below). This process is immensely helpful and cost-effective because it can predict which chemotherapies a patient is likely to respond or not respond to. Since genomics itself is a rather young field, there exist multiple barriers to wilder adoption of the relevant diagnostics. Among those barriers, lack of education and ambiguity about reimbursement are the two biggest factors. Until now, efforts for such education have been sparse and un-centralized. This is the problem we are tackling with BioInformative. BioInformative is a Portal where doctors, scientists and patients can contribute scientific information and reviews about these diagnostic tests. You can think of it as a hybrid of Wikipedia and Yelp, but instead of a dining experience, it’s for a life-saving cause. Anyone with first-hand experience with these tests is invited to review them – and that means YOU. We envision that guidelines for treatment and reimbursement policies will emerge naturally from this grass-roots movement.

MamaprintMammaPrint (offered by Agendia) is an example of the new class of genomic diagnostic tests. The major difference between these tests and previous genetic tests (like BRCA1) is in the scale. This new class of test can measure the activity of 1000+ genes or all genes in the genome. They can thus better characterize each individual tumor and offer more information for treatment choices.

There is much to be done in the race for the cure. You can walk for 3 days or type in the comfort of your own home. The latter option is less glamorous, but, in my opinion, is much more effective. Perhaps it is an excuse for my geeky self to hide behind my computer, but at the end of the day, we cannot buy tumors (actually we do, but they’re very expensive!) any more than we can buy lessons learned from other survivors. So, would you join me to be bioinformed?

Ann MorganAnn Mongan, PhD., is a cancer genomics scientist, mother of a silly baby boy, and wife to a radiologist. She has strong research interest in developing new cancer therapeutics and personalized medicine. You can find her other similar articles or reach her at www.bioInformative.com.

Elyn

~~If you don’t know your options, you don’t have any~~

Elyn Jacobs is a breast cancer survivor, professional cancer strategist, radio talk show host, speaker, and the Executive Director for the Emerald Heart Cancer Foundation. Elyn empowers women to choose the path for treatment that best fits their own individual needs. She mentors women who are coping with issues of well-being associated with breast cancer and its aftermath; she is passionate about helping others move forward into a life of health and wellbeing. Elyn has been featured on CNN Money, Talk About Health and more and has contributed to Breast Cancer Answers as well as written for the Pink Paper, Breast Cancer Wellness, Integrative Oncology Essentials, and she writes the Options for Life column for the Natural Healing-Natural Wellness Newsletter. Elyn lives in New York with her husband and two young boys.

Follow Elyn on Linkedin

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Donate to the Emerald Heart Cancer Foundation

Survive and Live Well Radio Show Answers Questions

In Uncategorized on October 8, 2013 at 9:30 pm

Do you or someone you love have cancer?  Are you looking for integrative support for conventional treatments?  Are you aware that integrative support can help reduce the side effects of treatment, improve quality of life and boost the efficacy of treatment? Did you know that CAM (complementary and alternative medicine) is often confused with true integrative medicine? Do you have questions regarding alternative or holistic approaches to cancer?  Does your doctor dismiss your questions? Do you struggle for answers beyond what your medical team can or will answer?

Did your doctor tell you that if you do not uncover the cause of your cancer and do not change the environment in which your cancer was permitted to grow, you are at increased risk for recurrence and that this could cost you your life? Did s/he tell you that certain foods can boost survival? Did s/he tell you why?

Or did s/he tell you that “cancer just happens?”

You are not alone.

EJ_3

Join me on Survive and Live Well, where I chat with experts to empower you to beat cancer.  Have a specific question you want answered?  Enter it here and I will answer your question on the show.

Replay the Survive and Live Well Archives.

View the Survive and Live Well Schedule.

Follow me on Facebook for cancer news and valuable information.

Tune in to the Survive and Live Well Radio Show

My best to you,

Elyn

~~If you don’t know your options, you don’t have any~~

ej portrait 150resElyn Jacobs is a breast cancer survivor, professional cancer strategist, radio talk show host, speaker, and the Executive Director for the Emerald Heart Cancer Foundation. Elyn empowers women to choose the path for treatment that best fits their own individual needs. She mentors women who are coping with issues of well-being associated with breast cancer and its aftermath; she is passionate about helping others move forward into a life of health and wellbeing. Elyn has been featured on CNN Money, Talk About Health and more and has contributed to Breast Cancer Answers as well as written for the Pink Paper, Breast Cancer Wellness, Integrative Oncology Essentials, and she writes the Options for Life column for the Natural Healing-Natural Wellness Newsletter. Elyn lives in New York with her husband and two young boys.

Follow Elyn on Linkedin

Tune in to the Survive and Live Well Show

Replay the Survive and Live Well Radio Show archives

Follow Elyn on Facebook

Follow Survive and Live Well on Twitter

Donate to the Emerald Heart Cancer Foundation

Food: The Natural Solution for Cancer-Protective Estrogen Management

In Uncategorized on September 9, 2013 at 2:47 pm

In my column Options for Life in the Natural Healing Natural Wellness Newsletter, I look to inspire cancer patients and provide hope to cancer survivors and their loved ones.  In the summer issue I shared my thoughts on a favorite topic of mine: Estrogen.  Many doctors seem to believe that estrogen is the enemy. While xenoestrogens must be avoided, the natural estrogen we produce is not to be feared, just managed. Further, we need estrogen for aiding in the prevention of heart disease and for strong, healthy bones–estrogen is essential to the health of all parts of your body, from your eyes to your heart to your brain to everywhere else. We can we live with our estrogen, we need it; it is just so terribly misunderstood.

farmstand Estrogen is thought to be the driving force behind many breast cancers; however, estrogen is only one part of the cancer story. To protect ourselves against cancer, we must control the estrogen, cut off the pathways for cancer, detoxify the body, reduce inflammation, and protect our DNA and so much more. What magic bullet can do all that?  Food.

To read the full article– Food: The Natural Solution for Cancer-Protective Estrogen Management in the Natural Healing Natural Wellness Newsletter  Click Here and go to page 22.

My mission is to share with people the information and strategies they need to survive cancer and to live a long healthy life.  I strive to fill the gaps between what we hear in our doctor’s office and what we really need to survive our cancer and live well.  Join me on my radio show, Survive and Live Well for expert advice on treating and beating cancer. Contact me for one-on-one cancer coaching. Follow me on my social networks and my blog; gather all the information you can to empower yourself to move past your cancer and move on to a life of wellness. Be an active participant in survival.

For more information:

Natural Alternatives to Tamoxifen You Tube

Natural Alternatives to Tamoxifen

Estrogen Management for Breast Cancer, Naturally

Elyn

~~If you don’t know your options, you don’t have any~~

Elyn Jacobs is a breast cancer survivor, professional cancer strategist, radio talk show host, speaker, and the Executive Director for the Emerald Heart Cancer Foundation. Elyn empowers women to choose the path for treatment that best fits their own individual needs. She mentors women who are coping with issues of well-being associated with breast cancer and its aftermath; she is passionate about helping others move forward into a life of health and wellbeing. Elyn has been featured on CNN Money, Talk About Health and more and has contributed to Breast Cancer Answers as well as written for the Pink Paper, Breast Cancer Wellness, Integrative Oncology Essentials, and she writes the Options for Life column for the Natural Healing-Natural Wellness Newsletter. Elyn lives in New York with her husband and two young boys.

Follow Elyn on Linkedin

Tune in to the Survive and Live Well Show

Replay the Survive and Live Well Radio Show archives

Follow Elyn on Facebook

Follow Survive and Live Well on Twitter

Donate to the Emerald Heart Cancer Foundation

Elyn Jacobs Consulting Receives 2013 Best of Manhattan Award

In Uncategorized on August 22, 2013 at 9:48 pm

I am incredibly honored to have received a 2013 Best of Manhattan Award, an award given to small businesses in New York City who make a difference in the lives of those within as well as outside our community. Thank you Manhattan Award Program for selecting me for the 2013 Best of Manhattan Award.

Press Release:  Manhattan Award Program honors cancer coach Elyn Jacobs

MANHATTAN August 14, 2013 — Elyn Jacobs Consulting, Incorporated has been selected for the 2013 Best of Manhattan Award in the Health Insurance category by the Manhattan Award Program.

2013 Manhattan AwardEach year, the Manhattan Award Program identifies companies that we believe have achieved exceptional marketing success in their local community and business category. These are local companies that enhance the positive image of small business through service to their customers and our community. These exceptional companies help make the Manhattan area a great place to live, work and play.

“Elyn Jacobs Consulting is honored to be recognized for service to those with cancer or looking to prevent cancer or its recurrence.   Helping each and every client find the path to wellness that best suits their needs is my top priority.  This would not be possible without the incredible doctors and medical experts who dedicate their lives to treating and healing the whole person, not just the disease of that person, and I am grateful for each and every one of them,” said Elyn Jacobs. ”

Elyn works tirelessly to empower people with the information they need to make the best possible choices for their cancer via education and one-on-one coaching within the tri-state area as well as globally. Learn how you can help prevent recurrence and minimize the treatment side effects and resulting effects that compromise your health and well-being. Visit Elyn at Elyn Jacobs Consulting Inc. Elyn also hosts a weekly radio show, Survive and Live Well to further support those looking for support and options.

“Many people do not realize that they have options when it comes to treatment.  My mission is to help clients find the best possible team and treatment for their particular cancer and needs.  I also know that it is not enough to treat cancer, we want to beat cancer and move on to a life of wellness. This involves finding the root cause and addressing that cause and not merely the symptom of cancer that presents. If we do not find the cause of our cancer, we cannot cure our cancer, “said Elyn.    

Various sources of information were gathered and analyzed to choose the winners in each category. The 2013 Manhattan Award Program focuses on quality, not quantity. Winners are determined based on the information gathered both internally by the Manhattan Award Program and data provided by third parties.

About Manhattan Award Program

The Manhattan Award Program is an annual awards program honoring the achievements and accomplishments of local businesses throughout the Manhattan area. Recognition is given to those companies that have shown the ability to use their best practices and implemented programs to generate long-term value.

The Manhattan Award Program was established to recognize the best of local businesses in our community. Our organization works exclusively with local business owners, trade groups, professional associations and other business advertising and marketing groups. Our mission is to recognize the small business community’s contributions to the U.S. economy.

SOURCE: Manhattan Award Program
Email: PublicRelations@awardprogram.org
URL: http://www.awardprogram.org

Elyn

~~If you don’t know your options, you don’t have any~~

Elyn Jacobs is a breast cancer survivor, professional cancer coach, radio talk show host, speaker, and the Executive Director for the Emerald Heart Cancer Foundation. Elyn empowers women to choose the path for treatment that best fits their own individual needs. She mentors women who are coping with issues of well-being associated with breast cancer and its aftermath; she is passionate about helping others move forward into a life of health and wellbeing. Elyn has been featured on CNN Money, Talk About Health and more and has contributed to Breast Cancer Answers as well as written for the Pink Paper, Breast Cancer Wellness, Integrative Oncology Essentials, and she writes the Options for Life column for the Natural Healing-Natural Wellness Newsletter. Elyn lives in New York with her husband and two young boys.

Follow Elyn on Linkedin

Tune in to the Survive and Live Well Show

Replay the Survive and Live Well Radio Show archives

Follow Elyn on Facebook

Follow Survive and Live Well on Twitter

Donate to the Emerald Heart Cancer Foundation